Stupefied by the light.
How disabled do I look?
Many people do not realise how terribly crippled I am. With my motorised wheelchair, my freedom of movement gives people the illusion that I'm quite able to move my limbs (illusion of mobility). With such a perception people don't understand why I'm closely monitored by my parents and carers. The truth is I need almost 24 hour care (a truly crippled existence). During my stay in hospital nurses even gossiped that I was pampered because my parents took care of me 24 hours a day (nurses don't have the time to take care of people like me).
The only effective movement I can achieve are in my fingers, wrist, neck and face. Yet these movements are fairly restricted. As a result I cannot feed myself, go to the toilet and bathe independently, transfer myself to bed, turn in bed, brush my teeth effectively, move my body, legs and arms out of a painful position, scratch (nobody would guess this) etc. Even when I sleep I need care (usually my father does this). One 21 year old British lad with my disease went as far as soliciting a hooker to experience sex. One of the only thing I can achieve independently is using the computer. I can also write with some help.
Yesterday I went to a party (Jaspreet's birthday) alone. I wasn't able to eat on my own so I didn't eat anything for some time. Jaspreet's relatives offered me food but I had to refuse politely even to the extant of lying that I had food already. Instead of eating and hanging out with the guests, I just kept them company. I did feel a bit left out. Later in the party Jaspreet gave me something to eat. Among my friends only Jaspreet and Sugasini are willing to feed me. I thank God for such kind souls.
Despite how wretched my existence seems I'm actually super-lucky. My parents give me everything I need including love and care. I also have a helper (maid) that takes care of me when my parents are not home. My helper also takes care of me in college. By taking good care of me and instilling positivity my parents brought me to where I am today. RANDTS wouldn't even have me if it was not for my parents.
Bye
12 mad rant(s):
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wow comrade... no idea you has such an interesting life story... must say... pretty honored to be sharing a blog with ya
Hey Albert!
I didn't know you were crippled to that extent. I thought you couldn't walk... Well, I'm honoured to share a blog with you as well. You're a strong person, ALbert! Keep on being strong!
Cheers, Hui Wen
I'm delighted to share my life story with you all. Ask any question about me. Don't worry about offending me.
[Berdie]: You are indeed a role model to all, a living testimony of strength and the never-say-die attitude.
man, u definitely have a fan in me. u r stronger than i... seriously. salutes!!
Thanks guys for your compliments. =)
Dude! Stop driving over my toes! ;P
Lov Ya Bro!
(and i mean that in the most un-gay way possible)
-_-"
I admire your for being able to stay strong & go on with live. We will support you in any way possible. If you have any problem, we can work together to help you. Right everyone?
Hey.. Our parents are always there for us thru thick and thin..
You're so lucky to have them..
And how foolish of me to attempt suicide back then coz i dun feel loved from them.. Until i admitted to the hospital, i realised they do care.. and my mummy even helped me out of depression.. well, my daddy is diff. he's not in the family anymore.
but i still love him.. i dun blame him for leavin us..
well, we just gotta appreciate what we got in life and thank God for what we have..
LOVE U! really hope to meet u one day..
We will go on until the end. Never once should we give up on life.
Dude! Livestrong!